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Abordaje neuropsicológico de la AME

Referencias

1. Rouault F, Christie-Brown V, Broekgaarden R, et al. Disease impact on general well-being and therapeutic expectations of European Type II and Type III spinal muscular atrophy patients. Neuromuscul Disord. 2017;27(5):428-438.

2 Hunter M, Heatwole C, Luebbe E, Johnson NE. What Matters Most: A Perspective From Adult Spinal Muscular Atrophy Patients. J Neuromuscul Dis. 2016;3(3):425-429.

3. Qian Y, McGraw S, Henne J, et al. Understanding the experiences and needs of individuals with Spinal Muscular Atrophy and their parents: a qualitative study. BMC Neurol. 2015;15:217.

4. Jeppesen J, Madsen A, Marquardt J, Rahbek J. Living and ageing with spinal muscular atrophy type 2: observations among an unexplored patient population. Dev Neurorehabil. 2010;13(1):10-18.

5. Higgs EJ, McClaren BJ, Sahhar MA, et al. 'A short time but a lovely little short time': Bereaved parents' experiences of having a child with spinal muscular atrophy type 1. J Paediatr Child Health. 2016;52(1):40-46.

6. Laufersweiler-Plass C, Rudnik-Schöneborn S, Zerres K, et al. Behavioural problems in children and adolescents with spinal muscular atrophy and their siblings. Dev Med Child Neurol. 2003;45(1):44-49.

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